Emma-Lo


Ana and Emily were stuck inside all last week because they both had a pretty bad cold (the second in under a month). They seem to have bonded even more over the past week. The above picture shows them playing one of their favorite games – putting on “butterfly” wings and dancing around in circles. At least they can keep each other busy during the extremely long winter months.

Ana has been instrumental (in my opinion) in helping Emily learn to talk. She will patiently sit with Emily and repeat words over and over while Emily tries to copy her. Ana thinks it’s a game and she doesn’t seem to get tired of repeating herself. They also like to sing together – theme songs for t.v. shows, their ABCs, you name it. Ana has also started translating for Emily (for example, “Emily says “ay-fi!” for elephant and Ana will say, “she’s saying “elephant” mommy). Emily has also begun trying to say her own name (“em-ay-yellow”). She ends her name with the word yellow because she’s trying to copy Ana who sometimes calls her “Emma-lo.” There’s J-Lo, and Emma-lo. Thus begins the road to fame.

Meet Alex


“This is a picture of Alex who is 14 (9/91). Alex was born with a bilateral cleft lip and palate and was one of the first patients at NYU to use the NAM. To date, Alex has had a lip surgery, palate surgery and a pharengelal flap at age 8. Alex is a well adjusted teenager who can’t get enough sports.”
- Martha (Alex’s mom)

Thanks, Martha, for sharing Alex with us. It is really a great opportunity to see an older child who used NAM and how wonderful he looks. If you are just starting out with taping – hang in there. All that hard work is worth it – really!

Cuteness Times Two


Ana and Emily share another sisterly hug. They are becoming quite fond of each other, which is relief after a long period of time when Emily would scream whenever Ana entered the room.

I had the pleasure of presenting Emily’s story to a class of Speech Pathology graduates at NYU last week. I was invited by Shelley Cohen, the Speech/Language Pathologist and Cleft Lip/Palate Team coordinator from the NYU team. Shelley teaches this class and likes to bring guest speakers from the team and also parents. I put together some slides for the class and just walked everyone through Emily’s story from the time I found out about the cleft while I was still pregnant, the decision to use NYU and NAM, the reality of treatment and surgery, etc. etc. In short, everything on this blog. It’s too bad there wasn’t an Internet connection in the class or I could’ve saved time by just clicking through this site! Thanks to the students who listened to my story and asked questions and thanks to Shelley for giving me the opportunity to talk about myself and Emily – even more than I already do.

Since it’s been a while since I posted, here are a few new pictures just for fun.


It’s almost as if she knows about the blog and posed for this one. She seems to be saying, “well, hello out there, how’ve you been?”


You may have noticed in the hugging picture, above, that Ana’s hair is…well…it’s gone. This was due to a minor mishap with Jim and a pair of scissors. I took her to get her first haircut to try to patch up the jagged edges and now she’s got a nice 1970′s bowl thing going on. Thank goodness for those big blue eyes.


Look at this coat! I mean, come on! If she was holding a magnifying glass and wearing a little detective hat the shot would’ve been perfect. Note to self: buy more props.