Comments for Cleft Stories http://www.cleftstories.com Stories about kids with cleft lip and palate, my Emily, nasoalveolar molding and more from an obsessed mom. Fri, 27 Aug 2010 06:58:39 +0000 hourly 1 http://wordpress.org/?v=3.0 Comment on You’re not alone by Ella http://www.cleftstories.com/cleft-lip-palate-archives/youre-not-alone/comment-page-1/#comment-147662 Ella Fri, 27 Aug 2010 06:58:39 +0000 http://www.cleftstories.com/?p=382#comment-147662 Hi all, how are you? Btw, did you send an email to me? It was on spam, but I saw your name just when the spam deleting was in process and I couldn't undo it. When will you update Em's pics:) Really miss her smiley face. Hugs for all of you Hi all, how are you? Btw, did you send an email to me? It was on spam, but I saw your name just when the spam deleting was in process and I couldn’t undo it. When will you update Em’s pics:) Really miss her smiley face. Hugs for all of you

]]> Comment on You’re not alone by Sofia http://www.cleftstories.com/cleft-lip-palate-archives/youre-not-alone/comment-page-1/#comment-144994 Sofia Fri, 02 Jul 2010 13:45:53 +0000 http://www.cleftstories.com/?p=382#comment-144994 Absolutely wonderful post, and awesome pictures of sweet Emily. Your tutorials on the NAM were a lifeline to me when going through it with my son Aiden (his ortho studied through NYU and has since brought the technique to CA, Aiden being the first kiddo to have it done here and a few since him). Thank you! Absolutely wonderful post, and awesome pictures of sweet Emily. Your tutorials on the NAM were a lifeline to me when going through it with my son Aiden (his ortho studied through NYU and has since brought the technique to CA, Aiden being the first kiddo to have it done here and a few since him). Thank you!

]]> Comment on You’re not alone by Joy http://www.cleftstories.com/cleft-lip-palate-archives/youre-not-alone/comment-page-1/#comment-137794 Joy Sat, 15 May 2010 16:23:46 +0000 http://www.cleftstories.com/?p=382#comment-137794 Absolutely wonderful post, and awesome pictures of sweet Emily. Your tutorials on the NAM were a lifeline to me when going through it with my son Aiden (his ortho studied through NYU and has since brought the technique to CA, Aiden being the first kiddo to have it done here and a few since him). Thank you! Absolutely wonderful post, and awesome pictures of sweet Emily. Your tutorials on the NAM were a lifeline to me when going through it with my son Aiden (his ortho studied through NYU and has since brought the technique to CA, Aiden being the first kiddo to have it done here and a few since him). Thank you!

]]> Comment on You’re not alone by Amanda http://www.cleftstories.com/cleft-lip-palate-archives/youre-not-alone/comment-page-1/#comment-137067 Amanda Sat, 08 May 2010 06:48:06 +0000 http://www.cleftstories.com/?p=382#comment-137067 I spent countless hours on the computer and reading information regarding clefts after I learned that our youngest son would be born with one. I found your site and your pictures and postings especially regarding the NAM very helpful. It was through research and seeing pictures of kids who used the NAM and kids who didn't that help us to make the right choice for our Matthew. Thank you for taking time to post all of this, it truly help me. God Bless. I spent countless hours on the computer and reading information regarding clefts after I learned that our youngest son would be born with one. I found your site and your pictures and postings especially regarding the NAM very helpful. It was through research and seeing pictures of kids who used the NAM and kids who didn’t that help us to make the right choice for our Matthew. Thank you for taking time to post all of this, it truly help me. God Bless.

]]> Comment on New haircut diva by Amy http://www.cleftstories.com/cleft-lip-palate-archives/new-haircut-diva/comment-page-1/#comment-136673 Amy Fri, 23 Apr 2010 05:03:33 +0000 http://www.cleftstories.com/?p=342#comment-136673 LOVE LOVE LOVE the new haircut. It looks so darn cute on her. :) LOVE LOVE LOVE the new haircut. It looks so darn cute on her. :)

]]> Comment on Let’s get this party started…again by Ella and Joel http://www.cleftstories.com/cleft-lip-palate-archives/lets-get-this-party-started-again/comment-page-1/#comment-136409 Ella and Joel Fri, 26 Mar 2010 04:28:46 +0000 http://www.cleftstories.com/?p=361#comment-136409 Hi Jackie, glad you are back. My husband is planning to apply for a scholarship in Philadelphia or Indiana. I really do hope that we can meet there. The snow really makes me curious, it must be freezing there:) And yes, Em is really tall now. I couldnt believe that she is the same girl I saw two years ago when I was so desperate. She grows too fast:( And about Em's question, my friend's answer might be helpful. First, ask her too see people around her. How they were created uniquely; some are tall( like her) and short, some have the big eyes( like hers) and small eyes and so forth. Then ask her to compare herself with you and then explain that God created us uniquely, He gave a special and unique mark to everyone, her cleft is her unique mark. Last, hug her and tell her that you love her and thank God because He gave her in your life. What's important here is how you talk about it( the atmosphere of conversation). If you are tense and nervous, she would think that there's something wrong with her. If you look sad, she would pity herself and eventually trapped in self-pity vicious cycle. Just relax, just like when you read bedtime stories.Then, tell her that you are okay if she wants to talk about this issue again and again. Dont give her the impression that " we only talked this once and that's it, This" taboo" thing should not be talked over again." I hope it works Jackie, I know how you feel. I'm scared too, but I wanted to try it once Joel is 4 years old.God bless you and fam. Hi Jackie, glad you are back. My husband is planning to apply for a scholarship in Philadelphia or Indiana. I really do hope that we can meet there. The snow really makes me curious, it must be freezing there:) And yes, Em is really tall now. I couldnt believe that she is the same girl I saw two years ago when I was so desperate. She grows too fast:( And about Em’s question, my friend’s answer might be helpful. First, ask her too see people around her. How they were created uniquely; some are tall( like her) and short, some have the big eyes( like hers) and small eyes and so forth. Then ask her to compare herself with you and then explain that God created us uniquely, He gave a special and unique mark to everyone, her cleft is her unique mark. Last, hug her and tell her that you love her and thank God because He gave her in your life. What’s important here is how you talk about it( the atmosphere of conversation). If you are tense and nervous, she would think that there’s something wrong with her. If you look sad, she would pity herself and eventually trapped in self-pity vicious cycle. Just relax, just like when you read bedtime stories.Then, tell her that you are okay if she wants to talk about this issue again and again. Dont give her the impression that ” we only talked this once and that’s it, This” taboo” thing should not be talked over again.” I hope it works Jackie, I know how you feel. I’m scared too, but I wanted to try it once Joel is 4 years old.God bless you and fam.

]]> Comment on Let’s get this party started…again by Shelly http://www.cleftstories.com/cleft-lip-palate-archives/lets-get-this-party-started-again/comment-page-1/#comment-132561 Shelly Sat, 27 Feb 2010 23:20:50 +0000 http://www.cleftstories.com/?p=361#comment-132561 Your girls looks so much alike! They are both very beautiful. If you are having a spam issue, you could activate or install Akismet. I was getting hit with 100's of spam comments a day on my personal finance blog and once I finally activated Akismet it started going through the spam for me. :-D Your girls looks so much alike! They are both very beautiful.

If you are having a spam issue, you could activate or install Akismet. I was getting hit with 100′s of spam comments a day on my personal finance blog and once I finally activated Akismet it started going through the spam for me. :-D

]]> Comment on Let’s get this party started…again by Jackie http://www.cleftstories.com/cleft-lip-palate-archives/lets-get-this-party-started-again/comment-page-1/#comment-131545 Jackie Mon, 22 Feb 2010 18:31:37 +0000 http://www.cleftstories.com/?p=361#comment-131545 Shannon, We're very happy with NYU and I would whole heartedly recommend them to anyone looking for a team. We've always felt that Emily is in very good hands there. I think you should definitely give them a call and even take a trip to NY for a consultation. I can pass on the name of the team coordinator, just send me an email at jackie@jacquelinedooley.com. Jackie Shannon,

We’re very happy with NYU and I would whole heartedly recommend them to anyone looking for a team. We’ve always felt that Emily is in very good hands there. I think you should definitely give them a call and even take a trip to NY for a consultation. I can pass on the name of the team coordinator, just send me an email at jackie@jacquelinedooley.com.

Jackie

]]> Comment on Let’s get this party started…again by Shannon Frye http://www.cleftstories.com/cleft-lip-palate-archives/lets-get-this-party-started-again/comment-page-1/#comment-131537 Shannon Frye Sun, 21 Feb 2010 02:02:02 +0000 http://www.cleftstories.com/?p=361#comment-131537 We are still trying to figure out where we are going to take Adalynn now that we have moved to PA and going back to GA isn't really feasible. I just saw your post about NYU and was wondering if you have been happy there....obviously you have if you are supporting them, but after looking it up, just found out that it is only 2 hours from where I am right now which makes it VERY feasible. We also have CHOP (in Philadelphia) as an option, but didn't really get a good feeling about them when just calling to make an appointment. Any feedback or opinions would be much appreciated! And by the way-glad you are back!!! We are still trying to figure out where we are going to take Adalynn now that we have moved to PA and going back to GA isn’t really feasible. I just saw your post about NYU and was wondering if you have been happy there….obviously you have if you are supporting them, but after looking it up, just found out that it is only 2 hours from where I am right now which makes it VERY feasible. We also have CHOP (in Philadelphia) as an option, but didn’t really get a good feeling about them when just calling to make an appointment.

Any feedback or opinions would be much appreciated! And by the way-glad you are back!!!

]]> Comment on Sponsor us for the Forward Face Walk by Ella http://www.cleftstories.com/cleft-lip-palate-archives/sponsor-us-for-the-forward-face-walk/comment-page-1/#comment-124365 Ella Tue, 22 Dec 2009 03:50:41 +0000 http://www.cleftstories.com/?p=349#comment-124365 Hi, how's life? Hope everything is okay. Joel sends kisses for Emily and fam :) Hi, how’s life? Hope everything is okay. Joel sends kisses for Emily and fam :)

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